Services

•Information and Referral

•The HemoLink NOHF’s Quarterly Newsletter

•Counseling

•Educational Workshops and Seminars

•Social and Recreational Activities

•Client Advocacy

•Scholarships

•The Carmen S. Matteo Memorial Assistance Program

•HFA’s Dads in Action Program

•NHF’s First Step Program

•Club Champs

•Free MedicAlert ID

•Information and Referral: Information provided consists of clinical publications, medical journals, industry magazines and literature for children and adolescents. Requests arrive by phone, fax, U.S. mail and email. Referrals are made when a request for information exceeds the capacity of the resources of the Foundation. Referral sources include public, private and community agencies. The goal of the program is to provide persons with hemophilia and other bleeding disorders as well as the general public with the most current information concerning the history, pathology, treatment and research for hemophilia and other bleeding disorders.

•The HemoLink NOHF’s Quarterly Newsletter: The newsletter is mailed directly to the homes of consumers (persons with bleeding disorders). The format is reader-friendly and provides highlights from both local and national news, research, fundraising events, educational forums and treatment information. Articles also include news from local hemophilia treatment centers, the latest pharmaceutical products and legislative initiatives.
Please call the NOHF office to be added to the mailing list.

•Counseling: Through a contract with the Achievement Centers for children, free and confidential individual and family counseling is available to eligible members.

•Educational Workshops and Seminars: Programs are typically one-day events and can cover one topic or several. The programs provide formal and informal instruction to members on issues that effect their lives. These include but are not limited to: medical, psychosocial, legal and financial issues relevant to living with a bleeding disorder. Programs are evaluated and recommendations are incorporated into the program planning for the following year.

•Social and Recreational Activities: A variety of social events are offered each year to provide socializing opportunities to members and their families. The activities provide a social opportunity for members to enjoy each other’s company and have fun.

•Client Advocacy: The Foundation staff and board regularly advocate for health care rights, via letters to legislators and congressional office visits to educate and motivate government officials to the special needs of the community. Other activities include participation with other groups, committees and organizations who have similar goals. We strive to advocate for proper medical care and treatment for all persons with hemophilia and other bleeding disorders; to promote health and wellness by lobbying for health care rights and for appropriate reimbursement of medical hardships suffered by the hemophilia community.

•Scholarships:
Camp Scholarships: NOHF provides stipends to our young members to attend a summer camp. Camp scholarships are available for all children and adolescents with bleeding disorders. Guidelines for this program are available upon request.
Educational Scholarships: NOHF provides stipends for tutoring and other financial assistance for books and other educational tools to support the education of our consumer members. Educational Scholarships are available for all persons with bleeding disorders or to caretakers of persons with bleeding disorders.
Please click here to view the 2008 Matteo Educational/Camp Scholarship Application. Print out and fax or mail the completed application to NOHF for processing.
Please click here to view additional scholarship opportunities available to persons with bleeding disorders.

•The Carmen S. Matteo Memorial Assistance Program: Assistance is available through the generosity of the Matteo Family’s Annual Ron and Tim Matteo Memorial Golf Outing fundraiser. Dollars raised at this event support members with one time emergency assistance. Referrals must be made by the member's Hemophilia Treatment Center. Priority is given to the needs of children.

•HFA’s Dads in Action: A support group for males with bleeding disorders or male relatives of person's with bleeding disorders developed by the Hemophilia Federation of America.

•NHF’s First Step Program: First Step is a program for new parents developed by the National Hemophilia Foundation. It is a cooperative program of Akron Children’s Hospital, University Hospitals of Cleveland and NOHF. The program was created to assists new families through the challenging experience of dealing with the diagnosis of a genetic bleeding disorder. The program assists these new families with the education process, such as, navigating the medical system, understanding medical terminology, the "right to choice" and psychosocial concerns. The program also offers literature and support from the local hemophilia treatment center staff and the foundation. During the first few months of participation these new families are contacted periodically to ensure a sense of "connection" during this period of transition.

•Club Champs: Club Champs provides a fun environment for bleeding disorder children between the ages of 8 and 12 years old. The program includes interactive teaching tools, value clarification and peer support. Learning is geared for the youth of our agency and aids in developing problem solving and life skills that children with bleeding disorders need to live a healthy, happy life. The goal of this program is to provide training of life, social, and emotional awareness skills in a fun environment.

•FREE MedicAlert ID: Wearing a MedicAlert bracelet is an important way to be sure you or your child will receive medical care in an emergency situation. No fee is charged for this service, however membership is required. Membership begins at $1.00.
Please visit the Membership page to learn how to become an NOHF member. Please call the NOHF office to obtain a MedicAlert form.